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I wasn’t prepared for chronic kidney disease, an aHUS comorbidity

Renal failure, liver failure, hemolytic anemia, 18 blood transfusions, plasmapheresis, dialysis, chemotherapy, post-traumatic stress disorder, heart damage, permanent uterine damage, and a mini-stroke — I never expected any of this, or to be dying at the age of 36. All of this was my introduction to a rare…

Being rare isn’t the same as being lonely

“You’re dying.” That was my introduction to atypical hemolytic uremic syndrome (aHUS), and I’d never heard of it. On that day, my whole world turned upside down. In September 2020, I was at the top of my game. As an active single mom in a new city, I’d purchased…