My vision is a little blurry when I wake up. I rub my eyes to get them to adjust. My right eye clears with no issues, and I stretch while looking out the window. But my left eye feels off. My vision is still a little cloudy, and it feels…
Walking On Water — Shalana Jordan
Shalana “Shay” Jordan of central Florida, is a photographer, writer, retired educator, and mom of two boys. She’s navigating life with her “new normal” of battling atypical hemolytic uremic syndrome (aHUS), stage 4 kidney disease, lupus, May-Thurner syndrome, immune thrombocytopenia (ITP), Thrombic thrombocytopenic purpura (TTP), and uncontrolled hypertension. She received her aHUS diagnosis in 2020 at 36 years old.
Being a part of the company that publishes this website, BioNews, means she can take part in helping fellow rare disease patients adjust to the new life that’s unfolding for them. Hearing someone else’s experience with the “unknown” is invaluable. Being rare can be very lonely, but BioNews advocates daily to help patients realize they’re not so alone after all. Because life doesn’t end at diagnosis.
Featured Post
In the fall of 2020, I experienced a slew of severe symptoms that makes the head spin just thinking about it. These included a 104 F fever, chills, body aches, an upset stomach, a loss of appetite, abnormal physical weakness, deep purple bruising all over my body, an unrelenting migraine,…
