Walking On Water — Shalana Jordan

He looked up at me with his giant, deep brown eyes, and my heart immediately felt like it would burst. Before I could even stretch out my hands to signal for him to climb up, he was already settled in my lap. His tiny hands, feet, and voice melted my…

The slow and monotonous beat of heart monitors echoed throughout the dimly lit hallways. I could hear my blood pressure cuff inflating every hour. Was it Tuesday? Friday? Hours seemed to turn into days, and days into weeks. I’d hear whispers that weren’t there, my sleep was always being interrupted,…

A deep yawn escaped my lips before I even realized it, and I immediately regretted it. I reached for the left side of my face, cradling it like a baby animal. Pain shot through my gums, molars, jawbone, facial tissue, and even into my sinuses. It was just one of…

I pushed the door open and was met with blinding sunlight and strong sea winds. The smell of salt water and grilled chicken filled the air, as did the sound of Caribbean steel drum music. I traversed several decks on the cruise ship — moving around lounge chairs, descending multiple…

Note: This column describes the author’s own experiences with Soliris (eculizumab). Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy. I’ve endured five years of needles, regular blood work, IVs, bone pain, brain fog, loss of hair, eyebrows, and eyelashes,…

There I was five years ago, sitting in my car much longer than I should have. Just the thought of walking to the pharmacy was daunting, nearly panic-inducing. The longer I stared at the Walmart entrance, the farther away it got. I just wanted to go home, bathe, and get…