Author Archives: Mary Chapman

Travel Tips for People With aHUS

Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, travel takes extra planning and preparation. Here are some tips for a safe trip if you have aHUS. What are things to consider before traveling? Plan ahead to avoid rushing or leaving unprepared. In…

How Might aHUS Affect my Heart?

Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing abnormal blood clots to form in the kidneys’ small blood vessels. In some cases, aHUS can also affect the heart. Multiple organs affected In aHUS, blood clots can affect kidney function and…

Patients, Supporters Worldwide Recognizing Rare Disease Day 2020

An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening awareness about rare diseases and the hundreds of millions of individuals they are thought to affect. Patients, caregivers, and advocates worldwide will sport denim ribbons…

aHUS Alliance Gearing Up for Sept. 24 aHUS Awareness Day

Activities are set internationally to observe the Sept. 24 aHUS Awareness Day, which aims to raise visibility around the disease, highlight the latest research, and provide insight into patients’ needs. The fifth annual awareness day is coordinated by aHUS Alliance, an international umbrella group of patient organizations…