Author Archives: Mary Chapman

FAQs About the aHUS Registry

You may be considering enrolling in the ongoing global atypical hemolytic uremic syndrome (aHUS) registry. Here are some frequently asked questions and answers about the registry to help you learn more about it. What is the global aHUS registry? The global aHUS registry is an observational study (NCT01522183)…

Brain Fog in aHUS

While it’s not a classic symptom of atypical hemolytic uremic syndrome (aHUS), brain fog is fairly common among patients with kidney-related diseases. It can affect your ability to focus, learn, retain information, and maintain employment. About aHUS aHUS is characterized by the formation of blood clots in the small…

Global aHUS Registry

If you have atypical hemolytic uremic syndrome (aHUS), you may want to consider enrolling in the ongoing global aHUS registry study still recruiting patients. Information collected through this registry will, among other uses, help researchers to better understand, diagnose, and treat this rare disease. What is aHUS? aHUS…

How to Help a Family Member With aHUS

Atypical hemolytic uremic syndrome (aHUS) can lead to multiple health problems that affect the day-to-day life of a patient. Here are some ways in which family members can help support a person living with this extremely rare disease. What is aHUS? aHUS is characterized by blood clotting…

Signs of Depression in aHUS Caregivers

It can be exhausting and stressful to be the caregiver for someone who has a chronic disorder such as atypical hemolytic uremic syndrome (aHUS). Because stress can trigger anxiety and depression, among other issues, it is imperative that you practice self-care in order to stay healthy.

The aHUS Tracker

If you have atypical hemolytic uremic syndrome (aHUS), you need to have regular blood tests to check the health of your kidneys and your platelet and red blood cell counts. It is important to track your results over time. Here’s some information about how to do that,…