Author Archives: Mary Chapman

Raising Awareness of aHUS

Raising awareness of rare chronic disorders such as atypical hemolytic uremic syndrome, or aHUS, could mean more patients benefiting from earlier diagnosis and treatment. Here are some points about aHUS, and the ongoing efforts to make it more widely known. What is aHUS? One of about…

Self-care Tips for aHUS Patients

For people with atypical hemolytic uremic syndrome (aHUS), self-care is important to help cope with the multiple health problems resulting from the disease, including hemolytic anemia, thrombocytopenia (low platelet count), kidney failure, nausea, shortness of breath, fatigue, heart disease, and seizures. If you…

Spoon Theory for aHUS Patients

Life can be challenging with a rare and chronic disease like atypical hemolytic uremic syndrome (aHUS). Family and friends may not be able to understand what you regularly go through. That can be exhausting and frustrating. A metaphor called the spoon theory may help. What is the spoon…

aHUS Alliance Seeks Input from Ultomiris-treated Patients

To help persuade decision-making entities to make the atypical hemolytic uremic syndrome (aHUS) treatment Ultomiris (ravulizumab) available in countries with socially funded healthcare, aHUS Alliance Global Action is asking patients and caregivers worldwide to contribute their experience with the therapy. The organization is seeking input about the…

Mindfulness for People Living With aHUS

It can be challenging to live with a rare and chronic disease like atypical hemolytic uremic syndrome (aHUS). Using a tool called mindfulness can help you cope with the stress that often accompanies these challenges. What is mindfulness? Mindfulness is the practice of being constantly aware of…

Travel Tips for People With aHUS

Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, travel takes extra planning and preparation. Here are some tips for a safe trip if you have aHUS. What are things to consider before traveling? Plan ahead to avoid rushing or leaving unprepared. In…

How Might aHUS Affect my Heart?

Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing abnormal blood clots to form in the kidneys’ small blood vessels. In some cases, aHUS can also affect the heart. Multiple organs affected In aHUS, blood clots can affect kidney function and…