The National Organization for Rare Disorders (NORD) welcomes the advancement, by the U.S. House of Representative’s Energy and Commerce…
Articles by Mary Chapman
With the theme “Capabilities and Possibilities,” this year’s aHUS Awareness Day — observed annually on Sep. 24 — seeks…
“Awareness through Togetherness” is the theme for supporters around the world to mark this year’s aHUS Awareness Day, on Sept.
The National Organization for Rare Disorders’ (NORD) “Living Rare, Living Stronger Patient and Family Forum” is back in person…
From participating in an organ donor registration drive to sharing a community video project, supporters globally are poised to mark…
At its first virtual investor event, biotech company Centogene set a bold mission: to cure 100 rare diseases…
To help patient advocacy leaders and their partners better understand how global health statistics codes — known as ICD codes…
Those who wish to gain practical tools for living optimally with rare diseases are encouraged to attend the annual…
If you are living with a chronic disease such as atypical hemolytic uremic syndrome (aHUS), a concept called shoshin may…
Rare Disease Day at NIH, organized by the National Institutes of Health (NIH) and taking place on March 1,…