Walking On Water — Shalana Jordan

Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. Water hits my head for the first time in five long weeks, and feeling it flow down my…

“You’re dying.” That was my introduction to atypical hemolytic uremic syndrome (aHUS), and I’d never heard of it. On that day, my whole world turned upside down. In September 2020, I was at…

We take medication to get better after an illness or to keep us healthy when we have a problematic condition. I’ve never liked taking medicines, but with my atypical hemolytic uremic syndrome (aHUS)…

I was experiencing the worst migraine of my life. I could feel my heartbeat in my eyes and forehead. Rubbing my temples seemed like the appropriate thing to do, but it provided little relief.

Living with a rare and chronic illness is horrible. It can hinder your quality of life, make it difficult to work, and even affect your relationships with family and friends. Medical treatments, doctor appointments,…

My eyes sting and my vision is blurry. I rub my right eye and notice black and brown makeup smeared across the back of my hand. Crap. I forgot to wash off my makeup. My…