Walking On Water — Shalana Jordan

Renal failure, liver failure, hemolytic anemia, 18 blood transfusions, plasmapheresis, dialysis, chemotherapy, post-traumatic stress disorder, heart damage, permanent uterine damage, and a mini-stroke — I never expected any of this, or to be dying at the age…

Water hits my head for the first time in five long weeks, and feeling it flow down my back is like being reborn. I never knew how much a simple shower could heal my soul. I slowly raise my…

“You’re dying.” That was my introduction to atypical hemolytic uremic syndrome (aHUS), and I’d never heard of it. On that day, my whole world turned upside down. In September 2020, I was at the top of my game.

We take medication to get better after an illness or to keep us healthy when we have a problematic condition. I’ve never liked taking medicines, but with my atypical hemolytic uremic syndrome (aHUS) and several comorbidities, I have…

I was experiencing the worst migraine of my life. I could feel my heartbeat in my eyes and forehead. Rubbing my temples seemed like the appropriate thing to do, but it provided little relief. The fluorescent lights in the…

Living with a rare and chronic illness is horrible. It can hinder your quality of life, make it difficult to work, and even affect your relationships with family and friends. Medical treatments, doctor appointments, invasive testing, and medications are…