How a stroke came out of my initial aHUS hospitalization
My left eye throbbed to the beat of my heart. Each pulse seemed more intense than the last. I’d had this headache off and on for over two months, but my then-new job had me waking up at 4:30…
Walking On Water — Shalana Jordan
Shalana “Shay” Jordan of Columbia, South Carolina, is a photographer, writer, retired educator, and single mom of two boys. She’s been adjusting to her “new normal” of battling atypical hemolytic uremic syndrome, stage 4 kidney disease, lupus, May-Thurner syndrome, and severe anemia. She received these diagnoses in 2020 at 36 years old. She wants to help fellow rare disease patients adjust to and prepare for the new life that’s unfolding for them. Because life doesn’t end at diagnosis.
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These strategies help me better prepare for surgery and recovery
“You’ll need someone present during the entire surgery, which can last three to four hours, just in case end-of-life decisions need to be made on your behalf.” I looked up from the information packet I was skimming. The words…
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