Walking On Water — Shalana Jordan

Note: This column was updated Jan. 17, 2025, to correct that Soliris is an antibody therapy. I can’t think of a worse personal fear then having two autoimmune diseases during a pandemic. Every…

People die every day. Old age, illnesses, accidents — death is an inevitable part of life. So how is it that even when I was standing face to face with death, I still didn’t…

Expensive or subpar healthcare is the norm in the United States. There’s a staggering number of inadequacies in our system. But having a rare disease can suddenly give you a golden ticket to exceptional…

Escaping death doesn’t come easily. While my severe health issues resulted in emergency medical care and a rare disease diagnosis, they also left scars — physical and emotional. I’d been unwell for much of…

“You’re dying.” That was my first introduction to atypical hemolytic uremic syndrome (aHUS). I didn’t have a diagnosis yet, but that’s how my journey began. Rewind to April 2020, when my family…