The things I miss from my life before aHUS
I pushed the door open and was met with blinding sunlight and strong sea winds. The smell of salt water and grilled chicken filled the air, as did the sound of Caribbean steel drum…
Walking On Water — Shalana Jordan
Shalana “Shay” Jordan of central Florida, is a photographer, writer, retired educator, and mom of two boys. She’s navigating life with her “new normal” of battling atypical hemolytic uremic syndrome (aHUS), stage 4 kidney disease, lupus, May-Thurner syndrome, immune thrombocytopenia (ITP), Thrombic thrombocytopenic purpura (TTP), and uncontrolled hypertension. She received her aHUS diagnosis in 2020 at 36 years old.
Being a part of the company that publishes this website, BioNews, means she can take part in helping fellow rare disease patients adjust to the new life that’s unfolding for them. Hearing someone else’s experience with the “unknown” is invaluable. Being rare can be very lonely, but BioNews advocates daily to help patients realize they’re not so alone after all. Because life doesn’t end at diagnosis.
Featured Post
My latest battle is with unrelenting dental pain
A deep yawn escaped my lips before I even realized it, and I immediately regretted it. I reached for the left side of my face, cradling it like a baby animal. Pain shot through…
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