Blood transfusions bought the doctors time to solve my aHUS riddle
The first thing that comes to mind when I hear someone needs a blood transfusion is that they’ve had a car accident or surgery that’s caused them to lose a large amount of blood.
Walking On Water — Shalana Jordan
Shalana “Shay” Jordan of Columbia, South Carolina, is a photographer, writer, retired educator, and single mom of two boys. She’s been adjusting to her “new normal” of battling atypical hemolytic uremic syndrome, stage 4 kidney disease, lupus, May-Thurner syndrome, and severe anemia. She received these diagnoses in 2020 at 36 years old. She wants to help fellow rare disease patients adjust to and prepare for the new life that’s unfolding for them. Because life doesn’t end at diagnosis.
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A big move jettisoned my self-care and other healthy habits
The winds picked up, blowing ominous clouds into view. The blocked sun and cool winds made the temperature drop more than 10 degrees. We were hours behind schedule. I’d wanted to be on the…
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