A Time for Everything Under Heaven

My wise old grandfather used to say, “You’ll know you’re old when your priest and your doctor are younger than you.” And so it has come to pass. My husband, Ronald, and I noticed it a while ago, actually. Not only that, even the bishop and the medical specialists are…

A Public Service Announcement About Advance Medical Directives

Because of my husband’s rare disease, I have spent significant time and effort advocating for his care. Since the onset of his aHUS, his job has been to follow doctors’ orders. Mine is to question them — and those of the insurance companies, pharmacists, and others. The role…

What Did We Do to Deserve This?

Our phone call was winding down. “So, what else is new?” Mom and I asked each other. We used to have answers to this question. News, even. But for the past year and a half, nothing is new. Neither of us has gone anywhere, met anyone, or done much of…