January 13, 2021January 13, 2021 CD46 Mutation Not Enough to Trigger aHUS, Genetic Analysis Shows A common mutation in the CD46 gene associated with atypical hemolytic uremic syndrome (aHUS) onset does not seem to be enough to trigger the ... Read more
January 11, 2021January 11, 2021 NORD Seeks Speakers for 2021 Virtual ‘Living Rare, Living Stronger’ Forum The National Organization for Rare Disorders (NORD) is seeking individuals willing to share real-life experiences with rare diseases to speak at its upcoming virtual ... Read more
January 11, 2021January 11, 2021 aHUS Triggers Atypical hemolytic uremic syndrome (aHUS), a chronic multi-organ disease that primarily affects kidney function, may be caused by a genetic mutation coupled with a ... Read more
January 6, 2021January 6, 2021 aHUS Relapse Triggered by COVID-19, Case Report Finds The first reported instance of a COVID-19 infection triggering an atypical hemolytic uremic syndrome (aHUS) relapse has been described in a recent case study. ... Read more
January 4, 2021January 4, 2021 aHUS in Children Atypical hemolytic uremic syndrome (aHUS) can occur during childhood and at any time thereafter. Here is more information about how aHUS may affect children. ... Read more
Health Insight 5 Main Symptoms of aHUS December 21, 2020 In atypical hemolytic uremic syndrome (aHUS), an overactive immune system mistakenly attacks the lining ...
News AstraZeneca Set to Acquire Alexion Pharmaceuticals in 2021 December 16, 2020December 16, 2020 After unanimous votes by the boards of directors of both companies, AstraZeneca has announced ...
Health Insight How Does My Doctor Know I Have aHUS? December 15, 2020December 19, 2020 Since atypical hemolytic uremic syndrome (aHUS) is rare and has symptoms similar to those ...
News Specific aHUS Mutations Affect Relapse Risk After Soliris Discontinued, Data Show December 9, 2020December 9, 2020 The specific disease-causing mutations in a person with atypical hemolytic uremic syndrome (aHUS) affect ...
Health Insight aHUS and School December 7, 2020December 7, 2020 A rare chronic illness such as atypical hemolytic uremic syndrome (aHUS) can make going ...
News, syndicated NORD Push for Rare Disease Advisory Councils Focus of Dec. 16 Public Meeting December 2, 2020December 1, 2020 To empower and equip members of the rare disease community to engage state leaders ...
FAQs About the aHUS Registry November 30, 2020November 30, 2020 You may be considering enrolling in the ongoing global atypical hemolytic uremic syndrome (aHUS) registry. ...
Survey Finds COVID-19 Disrupted Care, Well-Being of Rare Disease Patients in Europe November 26, 2020November 25, 2020 The first wave of COVID-19 in Europe severely disrupted access to care and raised stress ...
Latest NORD Webinar Offers Insights on Starting Nonprofit, Patient Registry November 20, 2020November 18, 2020
Most aHUS Patients May Benefit From Dosing Interval Extension in Soliris Maintenance Treatment November 18, 2020November 18, 2020
Ultomiris More Cost-effective Than Soliris for aHUS Patients in US, Study Finds November 11, 2020November 11, 2020 Ultomiris (ravulizumab) is expected to be more cost-effective than its predecessor Soliris (eculizumab) as ...
NORD Hosting ‘RareLaunch’ Workshops to Help Start Rare Disease Non-profits November 6, 2020November 4, 2020
Ultomiris Effective in Pediatric aHUS Previously Treated With Soliris, Study Suggests November 4, 2020November 4, 2020
aHUS and Sleep Disorders November 2, 2020November 2, 2020 Patients with atypical hemolytic uremic syndrome (aHUS) may experience problems with sleep. Here are ...
UK Organization ‘Same But Different’ Announces ‘Glimmer of Hope’ Photo Contest Winner October 30, 2020November 4, 2020
Soliris Eases Fatigue, Other Common aHUS Symptoms, Real-world Data Show October 28, 2020October 28, 2020
Health Insight aHUS and Fatigue October 26, 2020October 26, 2020 People with atypical hemolytic uremic syndrome (aHUS) may experience fatigue — extended periods of ...
News, syndicated Telehealth ‘Helpful’ Alternative to In-person Care, Rare Disease Patients Say October 23, 2020October 23, 2020 A majority of rare disease patients using telehealth during the COVID-19 pandemic thought the experience ...
Health Insight aHUS and Vision October 19, 2020October 19, 2020 Atypical hemolytic uremic syndrome (aHUS) primarily affects the kidneys. But it can also damage ...
News FDA Approves New Ultomiris Formulation That Shortens Infusion Time October 14, 2020October 14, 2020 The U.S. Food and Drug Administration (FDA) has approved a new formulation of Ultomiris (ravulizumab), ...
Health Insight aHUS and Seizures October 12, 2020October 12, 2020 Atypical hemolytic uremic syndrome (aHUS) mainly affects the kidneys, but it can also take ...
News Case Highlights Need to Identify More aHUS-causing Mutations October 7, 2020October 7, 2020 Research is needed to identify more mutations that cause atypical hemolytic uremic syndrome (aHUS), ...
News, syndicated Same But Different Asks Public to Vote on ‘Glimmer of Hope’ Calendar Photos October 6, 2020October 6, 2020 Same But Different, a nonprofit U.K. group that uses art for social change, is ...
Health Insight How to Help a Family Member With aHUS October 5, 2020October 5, 2020 Atypical hemolytic uremic syndrome (aHUS) can lead to multiple health problems that affect the ...
News Japan Approves Ultomiris to Treat Patients With aHUS September 30, 2020September 30, 2020 Ultomiris (ravulizumab) has been approved in Japan for the treatment of adults and children ...
