Tips for aHUS Caregivers
Caring for someone with atypical hemolytic uremic syndrome (aHUS) can be a stressful. Here are some tips to help you cope with stress and ... Read more
Updates
-
-
What Different Blood Test Results Mean in aHUS
The initial diagnosis of atypical hemolytic uremic syndrome (aHUS) — a rare, progressive disease characterized by hemolytic anemia, or the destruction of red blood cells, ... Read more -
Treatment with Soliris May Help aHUS Patients Who Undergo Kidney Transplant, Study Suggests
Successful kidney transplant for atypical hemolytic uremic syndrome (aHUS) is aided by treatment with Soliris (eculizumab), a small Turkish study has found. The study “Renal Transplantation in Patients ... Read more -
Coping with aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare, progressive disease that results from tiny blood clots forming in small blood vessels, particularly those of ... Read more -
aHUS Alliance Gearing Up for Sept. 24 aHUS Awareness Day
Activities are set internationally to observe the Sept. 24 aHUS Awareness Day, which aims to raise visibility around the disease, highlight the latest research, ... Read more
-
FAQs in aHUS
Information about rare diseases such as atypical hemolytic uremic syndrome (aHUS) can be difficult ... -
Soliris Treatment is Safe in aHUS Patients, Registry Study Reports
Soliris (eculizumab) treatment shows a long-term positive benefit-risk profile in both adult and pediatric patients ... -
At NY Genome Center, Legal Expert Presents Ethical Dilemmas in Gene Editing
Developing gene therapies for rare diseases is one thing. Creating gene-edited “designer babies” is ... -
Soliris Withdrawal After Full Recovery in aHUS Patients Is Safe, Study Indicates
Soliris (eculizumab) withdrawal after several months of treatment and full recovery in people with atypical hemolytic ... -
Multidisciplinary Approach Needed to Evaluate Patients Suspected of Having aHUS, Case Report Says
A multidisciplinary approach is needed to evaluate patients suspected of having atypical hemolytic uremic ...
Subscribe to our mailing list
Get regular updates delivered to your email box.
Thanks! Please check your email for a confirmation email.