Updates

August 12, 2020August 12, 2020
aHUS Alliance Seeks Input from Ultomiris-treated Patients

To help persuade decision-making entities to make the atypical hemolytic uremic syndrome (aHUS) treatment Ultomiris (ravulizumab) available in countries with socially funded healthcare, aHUS Alliance ... Read more
August 11, 2020August 11, 2020
New Streaming Channel Showcases Rare Disease Films

When the COVID-19 pandemic forced the postponement of a rare disease film festival originally slated for May, its organizers set out to find a ... Read more
August 5, 2020August 5, 2020
aHUS Case Study Describes Intestinal Blood Clots After Kidney Transplant Rejection

The rejection of a kidney transplant was found to be the cause of intestinal bleeding and pain in a woman with atypical hemolytic uremic ... Read more
August 3, 2020August 3, 2020
Soliris vs. Ultomiris for aHUS

Soliris (eculizumab) and Ultomiris (ravulizumab-cwvz) are medications developed by Alexion to treat atypical hemolytic uremic syndrome (aHUS). How are these medications similar? Both Soliris and Ultomiris ... Read more
July 29, 2020July 29, 2020
Mutations Affecting C3 Protein Activity Linked to aHUS in Case Report

Mutations leading to the overactivation of the complement regulator protein C3 should be recognized as a cause of atypical hemolytic uremic syndrome (aHUS), a ... Read more

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Updates

aHUS Alliance Seeks Input from Ultomiris-treated Patients

New Streaming Channel Showcases Rare Disease Films

aHUS Case Study Describes Intestinal Blood Clots After Kidney Transplant Rejection

Soliris vs. Ultomiris for aHUS

Mutations Affecting C3 Protein Activity Linked to aHUS in Case Report

FAQs About Soliris

Rare Inflammatory Arthritis, Still’s Disease, Is Potential aHUS Trigger, Case Report Suggests

FAQs About Ultomiris for aHUS

Girl’s aHUS May Be Due to Autoimmune Thyroid Disease, Report Finds

Mindfulness for People Living With aHUS

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Weekly Ultomiris Injections May Be as Effective as Infusions, Phase 3 Data Suggest

Travel Tips for People With aHUS

Ultomiris Approved in Europe to Treat Children and Adults with aHUS

Planning for the Future When You Have aHUS

Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge

Skin Biopsy and How It Can Help Diagnose aHUS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Clinical Trials for aHUS

Coalition Will Address Racial Disparities in Rare Disease Communities

What’s a Treatment Plan and Do I Need One With aHUS?

aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman

I Have Just Been Diagnosed With aHUS, Now What?

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS, Trial Results Show

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

How Might aHUS Affect my Heart?

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

How to Deal with aHUS Attacks

CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU

FAQs About Dialysis in aHUS

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aHUS Alliance Seeks Input from Ultomiris-treated Patients

New Streaming Channel Showcases Rare Disease Films

aHUS Case Study Describes Intestinal Blood Clots After Kidney Transplant Rejection

Soliris vs. Ultomiris for aHUS

Mutations Affecting C3 Protein Activity Linked to aHUS in Case Report

FAQs About Soliris

Rare Inflammatory Arthritis, Still’s Disease, Is Potential aHUS Trigger, Case Report Suggests

FAQs About Ultomiris for aHUS

Girl’s aHUS May Be Due to Autoimmune Thyroid Disease, Report Finds

National Survey Seeks to Assess Full Social, Economic Burdens of Rare Diseases in US

Mindfulness for People Living With aHUS

Subscribe to our mailing list

Weekly Ultomiris Injections May Be as Effective as Infusions, Phase 3 Data Suggest

Travel Tips for People With aHUS

Ultomiris Approved in Europe to Treat Children and Adults with aHUS

Planning for the Future When You Have aHUS

Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge

Skin Biopsy and How It Can Help Diagnose aHUS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Clinical Trials for aHUS

Coalition Will Address Racial Disparities in Rare Disease Communities

What’s a Treatment Plan and Do I Need One With aHUS?

aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman

I Have Just Been Diagnosed With aHUS, Now What?

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS, Trial Results Show

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

How Might aHUS Affect my Heart?

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

How to Deal with aHUS Attacks

CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU

FAQs About Dialysis in aHUS

Pin It on Pinterest