Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day 2020 on Feb. 29. The activities are focused on heightening ... Read more
Updates
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How Does aHUS Differ from Other Thrombotic Microangiopathies?
Thrombotic microangiopathy (TMA) refers to the formation of blood clots in the small blood vessels of the body. Atypical hemolytic uremic syndrome (aHUS) is a ... Read more -
Advice on Starting Nonprofit Groups for Rare and Other Diseases Focus of NORD Webinar
Starting a 501(c)(3) tax-exempt nonprofit isn’t easy, but the National Organization for Rare Disorders gave a few tips for those looking to begin the ... Read more -
Advances in Diagnosis, Disease Characterization Needed in Canada to Improve aHUS Outcomes, Registry Study Suggests
Advancements in diagnosis and disease characterization are needed in Canada to improve the clinical outcomes of adults and children with atypical hemolytic uremic syndrome ... Read more -
Patients Suspected of Having aHUS Should be Treated With Soliris Immediately, Case Study Suggests
Patients who have symptoms that indicate severe atypical hemolytic uremic syndrome (aHUS) should be diagnosed as quickly as possible so that treatment with Soliris ... Read more
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Patients, Supporters Worldwide Recognizing Rare Disease Day 2020
An abundance of events are afoot around the world to mark Rare Disease Day ... -
FAQs About Kidney Transplants for Patients With aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare genetic disease associated with symptoms such ... -
FDA Efforts to Bring Patients into Treatment Decisions Focus of NORD Webinar
The U.S. Food and Drug Administration (FDA), a vast government bureaucracy, employs about 17,500 ... -
Understanding aHUS-linked Changes in Large Gene Cluster May Help in Diagnosis and Treatment, Review Says
Understanding the disease-related alterations in a large gene cluster that lead to atypical hemolytic ... -
What to Keep in Mind During Plasma Exchange Therapy When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare genetic disease that is usually triggered ... -
With Post-Brexit Move to Amsterdam Complete, EMA Renews Rare Disease Focus
The gleaming new Dutch headquarters of the European Medicines Agency (EMA), fronting Domenico Scarlattilaan ...
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