I’ve come a long way since that fateful day in September 2020 when I dragged myself into the emergency room with my 4-year-old on my hip and my 5-year-old trailing behind me. Nearly six years later, life with a permanent illness is like riding a roller coaster. One minute…
Discussion
Developing atypical hemolytic uremic syndrome (aHUS) complicated the recovery of a baby boy with typical hemolytic uremic syndrome (HUS) — a related condition caused by an infection — but prompt treatment with the approved infusion med Soliris (eculizumab) led to a complete recovery. That’s according to a case…
Becoming educated and informed about aHUS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your aHUS journey.
There is no cure for aHUS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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