Updates

July 6, 2020July 6, 2020
Travel Tips for People With aHUS

Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, travel takes extra planning and preparation. Here are some ... Read more
June 30, 2020June 30, 2020
Ultomiris Approved in Europe to Treat Children and Adults with aHUS

Alexion Pharmaceuticals announced that Ultomiris (ravulizumab) has been approved in the European Union to treat adults and children (weighing at least 10 kgs, or ... Read more
June 29, 2020June 29, 2020
Planning for the Future When You Have aHUS

Being diagnosed with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be frightening, especially as this disease may affect your lifespan. Your ... Read more
June 24, 2020June 24, 2020
Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge

A short film by Kidney Research UK looking at how scientific research has helped those with atypical hemolytic uremic syndrome (aHUS) garnered People’s Choice honors at this ... Read more
June 22, 2020June 22, 2020
Skin Biopsy and How It Can Help Diagnose aHUS

A skin biopsy is one of the tests that doctors can use to confirm a diagnosis of atypical hemolytic uremic syndrome (aHUS), a rare ... Read more

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Updates

Travel Tips for People With aHUS

Ultomiris Approved in Europe to Treat Children and Adults with aHUS

Planning for the Future When You Have aHUS

Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge

Skin Biopsy and How It Can Help Diagnose aHUS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Clinical Trials for aHUS

Coalition Will Address Racial Disparities in Rare Disease Communities

What’s a Treatment Plan and Do I Need One With aHUS?

aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman

I Have Just Been Diagnosed With aHUS, Now What?

Subscribe to our mailing list

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS, Trial Results Show

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

How Might aHUS Affect my Heart?

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

How to Deal with aHUS Attacks

CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU

FAQs About Dialysis in aHUS

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

What Types of Dialysis Are Given to People with aHUS?

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Soliris Helps Prevent aHUS Relapses During Pregnancy, Case Report Suggests

aHUS and Pregnancy

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Is aHUS Genetic?

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Dealing with Shortness of Breath When You Have aHUS

Tekturna Seen to Treat High Blood Pressure Associated with aHUS

Pin It on Pinterest

Travel Tips for People With aHUS

Ultomiris Approved in Europe to Treat Children and Adults with aHUS

Planning for the Future When You Have aHUS

Kidney Research UK Honored for Film on Leaps in aHUS Treatment, Knowledge

Skin Biopsy and How It Can Help Diagnose aHUS

Alexion Charitable Foundation Giving $1.1M to Assist Rare Disease Community During Pandemic

Clinical Trials for aHUS

Coalition Will Address Racial Disparities in Rare Disease Communities

What’s a Treatment Plan and Do I Need One With aHUS?

aHUS and Cobalamin C Deficiency Found for 1st Time in Young Woman

I Have Just Been Diagnosed With aHUS, Now What?

Subscribe to our mailing list

COVID-19 Delaying Rare Disease and Gene Therapy Trials, Pharma Execs Say

Ultomiris Safe, Effective at Resolving Life-threatening Complications of aHUS, Trial Results Show

Eurordis Urges Expansion of Newborn Screening Initiatives Across Europe

Video Games Connect Chronically Ill Children Isolated at Home, Hospital

Unity and EU-wide Efforts Focus of Online Rare Disease Meeting

How Might aHUS Affect my Heart?

Rare Diseases Clinical Research Network Opens Online Survey on COVID-19

How to Deal with aHUS Attacks

CHMP Favors Ultomiris to Treat Children and Adults with aHUS in EU

FAQs About Dialysis in aHUS

NORD Webinar Outlines COVID-19 Response on Financial, Policy Fronts

Industry leaders seek to advance innovative resources for rare and orphan disease communities amid COVID-19 outbreak

Surge in Telemedicine One ‘Good’ Outcome from COVID-19 Crisis, Doctors Say

What Types of Dialysis Are Given to People with aHUS?

NORD Opens COVID-19 Financial Aid Program for Rare Disease Community

Soliris Helps Prevent aHUS Relapses During Pregnancy, Case Report Suggests

aHUS and Pregnancy

NORD’s Advice on COVID-19: You’re Stronger Than You Think

Is aHUS Genetic?

NORD Partners with ‘Sing Me a Story’ for July 18–20 Living Rare Forum

Dealing with Shortness of Breath When You Have aHUS

Tekturna Seen to Treat High Blood Pressure Associated with aHUS

Pin It on Pinterest