Two brothers with atypical hemolytic uremic syndrome (aHUS) were also diagnosed with a rare inherited metabolic disorder after doctors in Turkey investigated the unusual symptom of urine that repeatedly turned black, according to a case report. The siblings, ages 24 and 19, had experienced several episodes of aHUS, a…
Discussion
People with atypical hemolytic uremic syndrome (aHUS) consider treatment effectiveness and safety as top priorities when choosing medications, an international survey showed. Most patients also said they would prefer oral therapies and less frequent dosing. The findings, based on responses from 122 patients, revealed a substantial burden from treatment-related…
Discussion
Kidney transplants can result in favorable outcomes for people with atypical hemolytic uremic syndrome (aHUS) in India, even when the disease returns after transplant, provided patients are evaluated before surgery and treated for complications soon afterward if they occur. That’s according to a new study from the Asian nation…
Discussion
This month marks the six-year anniversary of my life completely changing due to an ultra-rare disease called atypical hemolytic uremic syndrome (aHUS). Six years ago, I was blissfully ignorant about just how severe chronic illness can be — the struggles, the unknowns, the inconveniences, the setbacks, and even the…
Becoming educated and informed about aHUS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your aHUS journey.
There is no cure for aHUS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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