Many people may consider something rare as being unique. One of a kind. Nothing else is like it. Being rare can suggest exclusivity, or being in a class of its own. For me, rare means dealing with five different rare diseases. They are lupus, hypermobile Ehlers-Danlos syndrome (EDS),…
Doctors successfully used a combination of Ultomiris (ravulizumab) and a blood pressure medication called sacubitril/valsartan to manage a case of atypical hemolytic uremic syndrome (aHUS) complicated by extremely high blood pressure. Researchers said it was the first reported case of the treatment combo being used to manage aHUS…
Becoming educated and informed about aHUS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your aHUS journey.
There is no cure for aHUS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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