Swelling, swelling everywhere. I can’t find a reason for it, but it’s resulting in multiple issues for me. In the fall of 2020, I nearly died from an ultra-rare disease called atypical hemolytic uremic syndrome (aHUS), an autoimmune disease in which my immune system attacks and destroys my red…
Discussion
Treatment with Ultomiris (ravulizumab) led to rapid blood and kidney recovery in a 12-year-old girl with atypical hemolytic uremic syndrome (aHUS) associated with a rare genetic mutation, according to a case report. The girl developed acute kidney failure, thrombocytopenia (low counts of platelets, small cell fragments that help…
Becoming educated and informed about aHUS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your aHUS journey.
There is no cure for aHUS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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