This month marks the six-year anniversary of my life completely changing due to an ultra-rare disease called atypical hemolytic uremic syndrome (aHUS). Six years ago, I was blissfully ignorant about just how severe chronic illness can be — the struggles, the unknowns, the inconveniences, the setbacks, and even the…
Discussion
A woman with a history of blood abnormalities and kidney problems during and after pregnancies was eventually diagnosed with postpartum-triggered atypical hemolytic uremic syndrome (aHUS) in a case study. After aHUS was strongly suspected, she began Soliris (eculizumab) treatment and ultimately achieved complete remission. The researchers recommended that…
Becoming educated and informed about aHUS is a good first step. Here you’ll find general information about the disease, including diagnosis, symptoms, and causes.
It helps to know others have been where you are now. Here’s a collection of our columnist’s words of wisdom to help you along on your aHUS journey.
There is no cure for aHUS yet, but here you can find more information about current therapeutic approaches, as well as experimental treatments that are in the pipeline.
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