Columns

Grappling with the cost of healthcare with a rare disease

Several years ago, terms like “deductible,” “in and out of network,” “PPO,” “Medicaid,” “Medicare,” “Medigap,” “SNAP,” “prescription coverage,” and “disability” were thrust upon me suddenly and without warning. I had to learn them quickly to continue receiving lifesaving care. I was sitting in a hospital…

The day I tasted 2 types of IV fluids running into my body

My mouth was dry and my throat burned. It was becoming hard to swallow. I hadn’t been allowed to drink or eat anything for hours because I’d been admitted to the emergency room and was hit with a barrage of tests. A young and apprehensive nurse came in holding a…