Columns

With aHUS, I must pay attention to changes in weather

As the garage door opens, cold air pours in, creeping into my joints and bending my limbs. I step onto the driveway and am hit with a breeze that freezes me even more. Winter is here, and it will be like this for the next few months. I’ve always loved…

Pregnancy-triggered aHUS can be sudden and dangerous

I was exhausted but couldn’t sleep. My insides felt as if an angry lava monster had its hot hands gripping and squeezing all within my torso. I was in so much pain that I was shivering. But my nurse assured me that this reaction was probably normal, given the spinal…

Amid tragedy, I’m facing a mix of stress and chronic illness

My parents went missing in western North Carolina on Sept. 27, the day after Hurricane Helene made landfall, dumping months worth of rain in just a few days. The flooding and destruction were widespread and catastrophic. At my parents’ home, the water level reached about 8 feet. And on Tuesday,…

Natural disasters, including Helene, can put patients at risk

Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. As I’m writing this column on Oct. 1, I’m relatively safe from the aftermath of Hurricane Helene’s battering here in Winston-Salem, North Carolina, which is in a fairly central part of the state.

Diseases can come in pairs or even in multiples

One disease can turn to two diseases. Two diseases can turn to three diseases, all with their own comorbidities and complications. When I was diagnosed with an ultrarare autoimmune disease that nearly killed me, I knew it’d complicate my life, especially because I was already living with another autoimmune…

How complications of aHUS resulted in a liver hematoma

I awoke to bright sunshine bathing the side of my face. For a moment, the soothing warmth felt nice, but it was soon replaced by burning, searing pain. My breath hitched, and I immediately reached to my left side. Where was I? What had happened? My head ached, my throat…