Columns

Amid tragedy, I’m facing a mix of stress and chronic illness

My parents went missing in western North Carolina on Sept. 27, the day after Hurricane Helene made landfall, dumping months worth of rain in just a few days. The flooding and destruction were widespread and catastrophic. At my parents’ home, the water level reached about 8 feet. And on Tuesday,…

Natural disasters, including Helene, can put patients at risk

Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. As I’m writing this column on Oct. 1, I’m relatively safe from the aftermath of Hurricane Helene’s battering here in Winston-Salem, North Carolina, which is in a fairly central part of the state.

Diseases can come in pairs or even in multiples

One disease can turn to two diseases. Two diseases can turn to three diseases, all with their own comorbidities and complications. When I was diagnosed with an ultrarare autoimmune disease that nearly killed me, I knew it’d complicate my life, especially because I was already living with another autoimmune…

How complications of aHUS resulted in a liver hematoma

I awoke to bright sunshine bathing the side of my face. For a moment, the soothing warmth felt nice, but it was soon replaced by burning, searing pain. My breath hitched, and I immediately reached to my left side. Where was I? What had happened? My head ached, my throat…

With my fiance’s health crisis, I feel a new degree of empathy

It’s the sensation you get when you’re walking up a flight of stairs and feel like you’re breathing through a straw. It’s the terrifying moment when your scope of vision begins to shrink just before you black out. It’s your legs burning and feeling like Jell-O when you’ve been standing…

How I deal with brain fog and the daily challenges it brings

Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. This column describes the author’s own experiences with vitamin D. Not everyone will have the same response to treatment. Consult your doctor before starting or stopping a therapy or supplement. “Oh, my God, Shay!…