The warmer weather in Florida has made me feel alive again
I rub my eyes as sunlight bathes my face. I stretch and sit up, peering out of the floor-to-ceiling windows in our new home and over the balcony. My new view overlooks a lake…
Shalana “Shay” Jordan of Columbia, South Carolina, is a photographer, writer, retired educator, and single mom of two boys. She’s been adjusting to her “new normal” of battling atypical hemolytic uremic syndrome, stage 4 kidney disease, lupus, May-Thurner syndrome, and severe anemia. She received these diagnoses in 2020 at 36 years old. She wants to help fellow rare disease patients adjust to and prepare for the new life that’s unfolding for them. Because life doesn’t end at diagnosis.
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