For people with atypical hemolytic uremic syndrome (aHUS), self-care is important to help cope with the multiple health…
Articles by Mary Chapman
The EveryLife Foundation for Rare Diseases has launched a scholarship fund in the U.S. to support individuals with rare…
Life can be challenging with a rare and chronic disease like atypical hemolytic uremic syndrome (aHUS). Family and friends…
To help persuade decision-making entities to make the atypical hemolytic uremic syndrome (aHUS) treatment Ultomiris (ravulizumab) available…
It can be challenging to live with a rare and chronic disease like atypical hemolytic uremic syndrome (aHUS). Using…
Atypical hemolytic uremic syndrome (aHUS) is a multi-organ disease that primarily affects kidney function. Therefore, travel takes extra planning…
A short film by Kidney Research UK looking at how scientific research has helped those with atypical hemolytic uremic syndrome (aHUS)…
Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing abnormal blood clots…
The Rare Diseases Clinical Research Network (RDCRN) has opened an online survey to better understand how the…
The National Organization for Rare Disorders (NORD) has opened a financial assistance program for people in rare disease community…