Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. Halloween is one of my favorite holidays. Every year, my family dresses up in themed costumes to go trunk-or-treating and door-to-door candy-grabbing. But in 2020, I had no idea if something as simple…
Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. “Mind over matter” is an expression I’ve always heard, but I never took it to heart until after my near-death experience. It’s amazing how my state of mind and the perception others have…
Receiving a rare disease diagnosis is not only a life-changing event, it is a life-dividing moment. Suddenly, all the details of life fall into one of two categories: before and after. Every memory and dream, all the old routines and new challenges are forever informed by that experience. It…
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