News

November 5, 2019November 5, 2019

Severe Hypertension Common in aHUS Patients and Soliris Effective at Treating Them, Study Finds

News

Severe and life-threatening hypertension is common in people with atypical hemolytic uremic syndrome (aHUS), and Soliris (eculizumab) is a more effective than plasmapheresis in treating these patients, a Spanish study finds. ... Read more

October 29, 2019October 29, 2019

Rare Eye Manifestations Linked to aHUS, Study Reports

News

A rare case of a 20-year-old male with atypical hemolytic uremic syndrome (aHUS) showing damage to both eyes that culminated in impaired vision highlights the importance of prompt diagnosis ... Read more

October 23, 2019October 23, 2019

FDA Approves Alexion’s Ultomiris for Treating aHUS in Children and Adults

News

The U.S. Food and Drug Administration (FDA) has approved Ultomiris (ravulizumab-cwvz) for the treatment of adults and children ages one month and older with atypical hemolytic uremic syndrome (aHUS), ... Read more

October 16, 2019October 16, 2019

Clinical Deterioration Should Not Dictate Soliris Withdrawal, Report Suggests

News

Treatment of atypical hemolytic uremic syndrome (aHUS) with Soliris (eculizumab) should be maintained even after clinical deterioration, a case report suggests. This is the first report of suboptimal response to ... Read more

October 9, 2019October 9, 2019

Soliris Treatment Resolved aHUS in 2 Patients with Inflammatory Bowel Disease, Study Reports

News

Treatment with Soliris (eculizumab) led to successful resolution of atypical hemolytic uremic syndrome (aHUS) that was triggered by inflammatory bowel disease (IBD), a study of two cases has found. The ... Read more

October 2, 2019October 2, 2019

Soliris Treatment for aHUS May Not Increase Risk for Miscarriages, Small Study Suggests

News

Treatment with Soliris (eculizumab) in pregnant women with atypical hemolytic uremic syndrome (aHUS) may not increase the risk of miscarriage, according to the analysis of a small group of patients enrolled in the Global aHUS ... Read more

September 27, 2019September 27, 2019

NORD 2019 Rare Disease Summit Set for Oct. 21-22 in Washington, DC

News

Next month’s annual conference of the National Organization for Rare Disorders (NORD) in Washington, D.C., couldn’t come at a better time, says Marshall Summar, MD, chairman of NORD’s board ... Read more

September 25, 2019September 25, 2019

aHUS Linked to Similar Disorder via Complement System and Protein Deficiency, Study Says

News

Two diseases often difficult for doctors to distinguish between — atypical hemolytic uremic syndrome (aHUS) and thrombotic thrombocytopenic purpura (TTP) — are both marked by complement system activation and severe ... Read more

September 11, 2019September 11, 2019

Treatment with Soliris May Help aHUS Patients Who Undergo Kidney Transplant, Study Suggests

News

Successful kidney transplant for atypical hemolytic uremic syndrome (aHUS) is aided by treatment with Soliris (eculizumab), a small Turkish study has found. The study “Renal Transplantation in Patients With Atypical Hemolytic Uremic Syndrome: ... Read more

September 4, 2019September 4, 2019

aHUS Alliance Gearing Up for Sept. 24 aHUS Awareness Day

News

Activities are set internationally to observe the Sept. 24 aHUS Awareness Day, which aims to raise visibility around the disease, highlight the latest research, and provide insight into patients’ ... Read more

Pin It on Pinterest