Thrombotic microangiopathy (TMA) refers to the formation of blood clots in the small blood vessels of the body. Atypical hemolytic uremic syndrome (aHUS) is a form of TMA that is associated with such symptoms as hemolytic anemia (loss of red blood cells) and thrombocytopenia (low platelet count). Severe…
Health Insights
Atypical hemolytic uremic syndrome (aHUS) is a rare genetic disease that is usually triggered by environmental factors, though mutations in different genes can predispose a person to this disease. Its symptoms can include hemolytic anemia (loss of red blood cells), thrombocytopenia (low platelet count), and kidney failure.
What to Keep in Mind About Soliris Therapy When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare genetic disease caused by a combination of genetic and environmental factors that lead to symptoms such as hemolytic anemia (destruction of red blood cells), thrombocytopenia (low platelet count), and kidney failure. Soliris (eculizumab) by Alexion is…
Signs of Depression in Patients with aHUS
The potentially life-threatening symptom flares that sometimes result from the rare genetic disease atypical hemolytic uremic syndrome (aHUS) can be very difficult to deal with emotionally. A global poll of people with aHUS in 2016 indicated that 27% of patients who had undergone dialysis had anxiety…
Support Groups for Patients with aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare, genetic disease in which blood clots in the small blood vessels of the kidneys lead to symptoms such as fatigue, nausea, vomiting, hemolytic anemia (destruction of red blood cells), impaired kidney function, and thrombocytopenia (low platelet counts).
Tips for Maintaining a Personal Health Record When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a rare genetic disease that results in the formation of blood clots in the small blood vessels of the kidneys. The disease can lead to life-threatening complications such as hemolytic anemia (destruction of red blood cells), thrombocytopenia (low platelet count), and…
aHUS and Diet: What Should I Eat and What Should I Avoid?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease in which blood clots are formed in the small blood vessels of the kidneys, leading to symptoms such as hemolytic anemia — destruction of red blood cells — thrombocytopenia, or a low platelet count, and…
How Might aHUS Affect My Life Expectancy?
Atypical hemolytic uremic syndrome (aHUS) is an extremely rare disease that is characterized by the formation of blood clots in the small blood vessels of the kidneys. It is marked by the development in patients of hemolytic anemia (destruction of red blood cells), thrombocytopenia (low platelet count), and…
Tips for Managing Stress When You Have aHUS
The symptoms of atypical hemolytic uremic syndrome (aHUS) — ranging from fatigue, nausea and vomiting to impaired kidney function and low platelet counts — can cause considerable stress in patients, especially if not attended to diligently. aHUS is a rare disease in which blood clots form in the…
Protecting Your Kidneys When You Have aHUS
More than 50% of people with atypical hemolytic uremic syndrome (aHUS) — a rare disease characterized by the formation of blood clots in the small blood vessels of the kidneys — experience impaired kidney function. This can lead to end-stage kidney disease. Such complications can occur in…
Recent Posts
- Study finds alternative pathway is main driver of aHUS
- Rapid, sustained aHUS response seen with Ultomiris in real-world data
- Team care saves mother with trio of postpartum complications
- Once a good side hustle, donating plasma is now too risky for me
- Treatment halts aHUS recurrence after COVID-triggered relapse
- For women like me, hair loss can be particularly devastating
- aHUS drugs restore kidney function in 60% of patients in Romania
- aHUS has changed my life in drastic and unexpected ways
- Rare lupus nephritis–aHUS case improves after Soliris treatment
- How my young children had to adapt to having a sick parent