Health Insights

If you have atypical hemolytic uremic syndrome (aHUS) and are working, you may want to consider speaking with your employer about your disease. Here are some things to help you decide what is best for you to do. What is aHUS? aHUS is characterized by low levels of circulating…

If you are living with a chronic disease such as atypical hemolytic uremic syndrome (aHUS), a concept called shoshin may help to change your perspective, allowing you see the world, and your disorder, in a different light. What is shoshin? The word shoshin comes from Zen Buddhism, and means “beginner’s…

If you have atypical hemolytic uremic syndrome (aHUS) and are being treated with Soliris (eculizumab) or Ultomiris (ravulizumab-cwvz), you may wish to consider enrolling in OneSource, a complimentary and personalized patient support program by Alexion, the therapies’ manufacturer. What is aHUS? aHUS is a rare multi-organ disorder…

Atypical hemolytic uremic syndrome (aHUS) is a rare disease that is sometimes hard to diagnose. Health advocacy works to raise awareness about aHUS,  helping to ensure patients are given a faster and accurate diagnosis, treatment options, and ultimately, better medical care. Here is information about advocacy and organizations that advocate…

People with atypical hemolytic uremic syndrome (aHUS) usually have a genetic predisposition for disorders of the complement system. However, aHUS usually develops only following a triggering factor such as an infection, pregnancy, certain medications, or cancer. Following is more information about the relationship between aHUS and…

Atypical hemolytic uremic syndrome (aHUS) primarily affects the kidneys but it can also affect numerous other organs in the body — what doctors sometimes call extra-renal manifestations. To better diagnose and treat these symptoms, a multidisciplinary team of specialists may be necessary. If you’ve been diagnosed with aHUS, here…

Patients with atypical hemolytic uremic syndrome (aHUS) and their family members may benefit from paramedical services — those offered by therapists, dieticians, and social workers, among others. Here is further information on paramedical services and a listing of some which may be of help. What are paramedical services? Paramedical…

Atypical hemolytic uremic syndrome (aHUS) affects an estimated 1 in 500,000 people in the U.S. Almost half, between 42% and 47%, of these people are diagnosed before age 18. Children with aHUS may experience disease-related difficulties at school that affect their ability to learn. An individualized education…

Atypical hemolytic uremic syndrome (aHUS), a chronic multi-organ disease that primarily affects kidney function, may be caused by a genetic mutation coupled with a triggering event. Because aHUS can lead to tissue damage, anemia, and a high risk of bleeding and bruising, it’s important to understand more about the triggers…

Atypical hemolytic uremic syndrome (aHUS) can occur during childhood and at any time thereafter. Here is more information about how aHUS may affect children. What is aHUS? aHUS is a chronic disease where small blood clots form in multiple organs of the body, especially in the kidneys. The blood clots…