When society shut down at the onset of the COVID-19 outbreak last year, many healthy extroverts panicked. Their world changed instantly and drastically, and they had a hard time coping. Welcome to our world As a caregiver to someone with atypical hemolytic uremic syndrome (aHUS) for the previous…
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One of the first casualties of taking on the role as my husband’s caregiver was high heels. That’s ironic, since he is the one who convinced me to wear them. From flats to heels Before we met, I always wore flats. It was sneakers and loafers on my own…
I like that series of Books for Dummies, authored by experts in various fields. Written for the masses with no experience required, they employ a straightforward vocabulary in an easy-to-follow format. Shakespeare, calculus, cooking, quantum physics, beer, and Ireland are among the subjects tackled in these paperback…
Five years ago, my husband, Ronald, and I were overwhelmed with financial worries. Our business was struggling thanks to four broken contracts, a leaky roof, and an impatient banker. We worked long hours, juggled credit cards, sold the convertible, chased every lead, and hoped we could save what we…
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- Six years into my aHUS journey, being rare is not what I thought it would be
- Pregnancy repeatedly triggered aHUS in woman with C3 variant, case finds
- Plasma exchange helps child with treatment-resistant aHUS
- The big bruise I failed to pay attention to turned out to be a blood clot
- Nurses lead care team to heal aHUS baby’s severe skin wounds
- Blood disease helps trigger aHUS after childbirth in woman in rare case
- No answers about what’s causing severe inflammation and swelling
- Approved treatment helps girl recover from severe aHUS, report shows
- Blood protein may help track disease activity in people with aHUS
- Just along for the ride on the roller coaster of life with chronic illness