Anniversaries are typically a call for celebration, whether you’re honoring a wedding, the day you started at a job, or a special event or milestone. But for me, this time of year brings the anniversary of when I almost died. In September 2020, I was admitted to the intensive…
Columns
The first thing that comes to mind when I hear someone needs a blood transfusion is that they’ve had a car accident or surgery that’s caused them to lose a large amount of blood. I needed a blood transfusion after my first cesarean section delivery after complications from a…
Sept. 16 marked the three-year anniversary of my first near-death experience. In September 2020, I was hospitalized and then spent almost two months in the intensive care unit with multiple organs failing. After weeks of testing and interviews, doctors determined that I had atypical hemolytic uremic syndrome, a…
Being sick with a rare and complicated disease is terrifying, but dealing with medical issues during a pandemic is even worse. I went through the hardest time of my life during the worst of COVID-19, as I spent it mostly alone. In September 2020, I spent nearly two…
Note: This column was updated Jan. 16, 2025, to correct that Soliris is an antibody therapy. To say my life completely changed when I became a mother is an understatement. Suddenly, this small, fragile being was my world and greatest responsibility. I had a second child just one year…
A medical emergency can be a terrifying experience for anyone. If it’s followed with a complicated and rare medical diagnosis, it just intensifies the situation. A few years ago, that’s what happened to me. Little did I know that it was the beginning of a long road. I’m terrified…
Before my medical journey began, I had heard the term survivor’s guilt before, in reference to mass shootings, natural disasters, or other tragic events. Living through something traumatic changes your outlook on life. But I never anticipated that major medical events could come with guilt as well. Three years…
Healthcare in the United States is always a hot-button topic. The U.S. healthcare system has long been criticized as being inadequate, expensive, not inclusive, restrictive, and so many other things. I received a crash course on the subject when I almost died three years ago. Surprisingly, though, once I qualified…
Plasmapheresis is a word I’d never heard before October 2020. I’d heard of people donating plasma; in fact, I had a cousin who did it for money when I was growing up. But I had no idea what plasma was used for. Little did I know it’d play a…
Note: This column was updated Jan. 17, 2025, to correct that Soliris is an antibody therapy. This column describes the author’s own experiences with some alternative treatments. Not everyone will have the same response to them. Consult your doctor before starting or stopping a therapy. I’ve always found alternative…
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