More than half of the people with rare diseases and their caregivers, asked in a survey, were undecided or less…
Articles by Patricia Inácio, PhD
The EveryLife Foundation for Rare Diseases is accepting applications for a scholarship program that aims to help adults with a…
COVID-19 was identified as the trigger for atypical hemolytic uremic syndrome (aHUS) in two adults, but the patients —…
Treatment with Soliris (eculizumab) during pregnancy may help prevent subsequent relapses of pregnancy-associated atypical hemolytic uremic syndrome (aHUS),…
The number of treatments for children with rare diseases has grown over the past decade, according to a new study. However,…
A rare case of a 20-year-old male with atypical hemolytic uremic syndrome (aHUS) showing damage to both eyes that culminated…
Treatment with Soliris (eculizumab) in pregnant women with atypical hemolytic uremic syndrome (aHUS) may not increase the risk of miscarriage, according to the…
Successful kidney transplant for atypical hemolytic uremic syndrome (aHUS) is aided by treatment with Soliris (eculizumab), a small Turkish study has…
Therapies against the complement C5 protein, the target of Soliris (eculizumab), may be more effective than targeting proteins downstream…
New research shows how an antibody was able to enhance the function of a member of the complement system, called…