Walking On Water — Shalana Jordan

Becoming sick with a rare and chronic disease is life-changing. It can affect your health, physical strength, diet, and so much more. But I never knew I would gain new “superpowers,” too, including a better understanding of my own…

In our society, we’re encouraged to always be working, active, and busy. So when we finally get some free time, it’s an exciting thing. But what do you do when you have nothing but free time for weeks on…

Doctor appointments: They’re the bane of my existence but also a constant part of my life. Nephrologist, hematologist, primary care physician, gynecologic oncologist, pain management doctor, physical therapist, cardiologist — the list goes on. I see each of these…

Dialysis, which performs the kidneys’ work by filtering blood, is hard on the human body. It’s usually given to patients whose kidneys are functioning at less then 15% because of injury, infection, disease, or other medical complications. When…

Death is something no one wants to talk about, deal with, or experience. In September 2020, after an asymptomatic bout of COVID-19, I landed in the intensive care unit (ICU) for almost two months with multiorgan failure…

A rare disease diagnosis can be scary, overwhelming, and life-changing, often bringing unexpected health complications and comorbidities. During my time with a rare disease, I’ve learned that I have a proclivity for medical drama. In September 2020,…