“You’re dying.” That was my first introduction to atypical hemolytic uremic syndrome (aHUS). I didn’t have a diagnosis yet, but that’s how my journey began. Rewind to April 2020, when my family had COVID-19. My oldest child was very sick, but my youngest child and I had zero…
Walking On Water - a Column by Shalana Jordan
Recent Posts
- Early intervention key to safe kidney transplants for aHUS in India, per study
- Six years into my aHUS journey, being rare is not what I thought it would be
- Pregnancy repeatedly triggered aHUS in woman with C3 variant, case finds
- Plasma exchange helps child with treatment-resistant aHUS
- The big bruise I failed to pay attention to turned out to be a blood clot
- Nurses lead care team to heal aHUS baby’s severe skin wounds
- Blood disease helps trigger aHUS after childbirth in woman in rare case
- No answers about what’s causing severe inflammation and swelling
- Approved treatment helps girl recover from severe aHUS, report shows
- Blood protein may help track disease activity in people with aHUS