A skin biopsy is one of the tests that doctors can use to confirm a diagnosis of atypical hemolytic uremic syndrome (aHUS), a rare disease characterized by blood clotting in the small blood vessels of the kidneys that can damage these organs. The kidneys…
Health Insights
Clinical Trials for aHUS
Only a few treatment options exist for atypical hemolytic uremic syndrome (aHUS) and there’s currently no cure for the disease. One way that patients can help with the development of new and better treatments is by participating in clinical trials. What are clinical trials? Before pharmaceutical companies can…
What’s a Treatment Plan and Do I Need One With aHUS?
Living with a rare disease like atypical hemolytic uremic syndrome (aHUS) can be challenging. Given how rare aHUS is, many doctors (especially those in emergency rooms) may not be aware of the disease or the best treatments for it. Completing a treatment plan with the help of your…
I Have Just Been Diagnosed With aHUS, Now What?
Finding out that you have a rare disease like atypical hemolytic uremic syndrome (aHUS) can be confusing and frightening, especially if your doctor has only treated a few people with this disorder before. Here are a few tips to help anyone who is new to an aHUS diagnosis.
How Might aHUS Affect my Heart?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease that affects the kidneys by causing abnormal blood clots to form in the kidneys’ small blood vessels. In some cases, aHUS can also affect the heart. Multiple organs affected In aHUS, blood clots can affect kidney function and…
How to Deal with aHUS Attacks
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of small blood clots in the kidneys, blocking blood vessels, and causing damage that can lead to kidney failure. The disease also leads to anemia (low red blood cell counts) and thrombocytopenia…
What Types of Dialysis Are Given to People with aHUS?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood clots in the small blood vessels of the kidneys. The kidneys filter waste from the bloodstream and release it into the urine. The blood clots caused by aHUS can affect kidney function…
aHUS and Pregnancy
Atypical hemolytic uremic syndrome (aHUS), a rare disease in which small blood clots form in the kidneys, can be caused or exacerbated by pregnancy, which is sometimes called p-aHUS. For patients who already have aHUS, the disease greatly increases the risks of complications during pregnancy. If…
Is aHUS Genetic?
Atypical hemolytic uremic syndrome (aHUS) is a rare disease characterized by the formation of blood clots in the small blood vessels in the kidneys. What causes aHUS? Genetic mutations plus a trigger such as pregnancy, infections, cancer, or certain medications need to come together for a patient…
Dealing with Shortness of Breath When You Have aHUS
Atypical hemolytic uremic syndrome (aHUS) is a genetic disease characterized by the formation of blood clots in the small blood vessels of the kidneys. Apart from the various symptoms of aHUS, such as hemolytic anemia (destruction of red blood cells), thrombocytopenia (low platelet count), and …
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