Vaidyanathan Subramaniam,  —

More than 50% of people with atypical hemolytic uremic syndrome (aHUS) — a rare disease characterized by the formation of blood clots in the small blood vessels of the kidneys — experience impaired kidney function. This can lead to end-stage kidney disease. Such complications can occur in…

Rare diseases such as atypical hemolytic uremic syndrome (aHUS) can be difficult to cope with, both for patients and their caregivers. Caregiving is a very demanding and daily task. Here are some tips for family members and friends to help support caregivers, especially those who may be expressing feelings…

Atypical hemolytic uremic syndrome (aHUS) is a rare disease that causes abnormal blood clots to form in small blood vessels in the kidneys, blocking regular blood flow and making the kidneys unable to get rid of waste. The disease produces symptoms of anemia (extreme tiredness) and fluid buildup as a…

Caring for someone with atypical hemolytic uremic syndrome (aHUS) can be a stressful. Here are some tips to help you cope with stress and maintain your well-being. Take good care of your own health It is common to lose track of your needs when looking after someone affected by…

The initial diagnosis of atypical hemolytic uremic syndrome (aHUS) — a rare, progressive disease characterized by hemolytic anemia, or the destruction of red blood cells, and a low platelet count, called thrombocytopenia  — is done through a blood test. Therefore, it’s helpful for patients to understand…

Atypical hemolytic uremic syndrome (aHUS) is a rare, progressive disease that results from tiny blood clots forming in small blood vessels, particularly those of the kidneys. aHUS often leads to multiple problems, including hemolytic anemia (destruction of red blood cells), thrombocytopenia (low platelet count), and kidney…

Information about rare diseases such as atypical hemolytic uremic syndrome (aHUS) can be difficult to find, complicating the situation for both patients and caregivers. Here are answers to some of the more frequently asked questions about aHUS to serve as a ready reference. We also include suggestions for other…