In atypical hemolytic uremic syndrome (aHUS), an overactive immune system mistakenly attacks the lining of blood vessels. This triggers inflammation and leads to the formation of blood clots, especially in the small blood vessels. The blood clots can damage various organs, especially the kidneys, and cause red blood cells to…
Health Insights
How Does My Doctor Know I Have aHUS?
Since atypical hemolytic uremic syndrome (aHUS) is rare and has symptoms similar to those of other disorders, it can sometimes be challenging for a doctor to make a correct diagnosis. Thus, your doctor will likely use a number of different tests…
aHUS and School
A rare chronic illness such as atypical hemolytic uremic syndrome (aHUS) can make going to school more stressful and difficult for your child, and for you as a parent. Here are some tips that can help your child with aHUS succeed in school. How can aHUS affect schooling? Symptoms of…
Brain Fog in aHUS
While it’s not a classic symptom of atypical hemolytic uremic syndrome (aHUS), brain fog is fairly common among patients with kidney-related diseases. It can affect your ability to focus, learn, retain information, and maintain employment. About aHUS aHUS is characterized by the formation of blood clots in the small…
Global aHUS Registry
If you have atypical hemolytic uremic syndrome (aHUS), you may want to consider enrolling in the ongoing global aHUS registry study still recruiting patients. Information collected through this registry will, among other uses, help researchers to better understand, diagnose, and treat this rare disease. What is aHUS? aHUS…
aHUS and Sleep Disorders
Patients with atypical hemolytic uremic syndrome (aHUS) may experience problems with sleep. Here are some ways that aHUS can lead to sleep disorders and possible treatment options. What is aHUS? aHUS is a disease where the immune system is overactive, causing damage to blood vessels and leading to the…
aHUS and Fatigue
People with atypical hemolytic uremic syndrome (aHUS) may experience fatigue — extended periods of exhaustion or low energy — that can take a toll on health. Here is some information about how fatigue is related to aHUS and possible treatments to help manage it. What is aHUS? In patients with…
aHUS and Vision
Atypical hemolytic uremic syndrome (aHUS) primarily affects the kidneys. But it can also damage other organs, including the eyes. Vision problems such as eye pain, blurry vision, and, in severe cases, vision loss have been reported in patients, although they are not considered to be common. How does vision…
aHUS and Seizures
Atypical hemolytic uremic syndrome (aHUS) mainly affects the kidneys, but it can also take a toll on other organs and systems. The result can be symptoms such as vision problems, dizziness, headaches, and — examined in more detail here — seizures. What is aHUS? aHUS is a disease associated…
How to Help a Family Member With aHUS
Atypical hemolytic uremic syndrome (aHUS) can lead to multiple health problems that affect the day-to-day life of a patient. Here are some ways in which family members can help support a person living with this extremely rare disease. What is aHUS? aHUS is characterized by blood clotting…
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