The case of a man with atypical hemolytic uremic syndrome (aHUS) caused by a rare genetic mutation offers insights…
Articles by Forest Ray PhD
The two COVID-19 vaccines that recently received emergency approval from the U.S. and other worldwide regulatory agencies are expected…
Raremark, an online rare disease patient community, has launched a digital platform called Xperiome, aimed at streamlining the…
The EveryLife Foundation for Rare Diseases has launched a nationwide National Burden of Rare Disease Survey to measure…
The Alexion Charitable Foundation has awarded $1.1 million in grants to programs that support those with rare diseases during…
The Black Women’s Health Imperative (BWHI) recently created a Rare Disease Diversity Coalition focused on reducing racial disparities in…