Newly Diagnosed: You Are Not Alone on Your Journey

Whether you are a patient or a caregiver, it’s important to remember that you are not alone on this journey with atypical hemolytic uremic syndrome (aHUS) and that others have been in your shoes. Here’s a collection of our columnist’s words that she would like to share to help guide, inspire, and encourage you.

It Could Always Be Worse: My Husband’s Journey to Diagnosis

Columnist Annie Dixon shares what happened in the days before her husband Ronald’s aHUS diagnosis. What started out as a fever and fatigue turned into a diagnosis that would change the rest of their lives.

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Caregiving and Convenience: If the Shoe Fits

Before Annie met Ronald, she never wore high heels. That changed while they were dating, but then it changed again after his diagnosis. Now, in her role as caregiver, she has a collection of both heels and flats for all occasions.

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My FAQs for aHUS

As a caregiver, Annie has heard it all when it comes to questions about aHUS. Here she answers the most common, providing a simple guide for patients and caregivers themselves or for those who want to be able to answer their loved ones’ questions.

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Investigative Questions Are Essential to Caregiving

After reading a couple articles about aHUS and COVID-19, Annie complied a list of questions she had for doctors about COVID-19, aHUS, and the vaccines. Although the answers they received may not be applicable to other patients, she encourages others to ask their own questions.

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